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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 2,237 Location: nr Southampton
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the hospital rang, they have cancelled my appt with the registrar emergency clinic.
he has gone sick.
they cant offer a new appt for another 4 wks....
Im afraid I cried.
the appt lady was moved and has rung the consultant secretary. consultant secretary rang me, consultant is going to see me at 8.30am tomorrow.
It is 4 wks since I wrote to them all to sort out my care. None of it is sorted out of course. Just the emergency presenting is (hopefully) to be addressed. Its such a fight.
I am so upsethow to be a velvet bulldoser
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 1,689 Location: Durham
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Not surprising you`re upset Jenni - there doesn`t seem to be any "joined-up care" at all where you are. I hope the consultant listens to you tomorrow - cry a bit more if you feel like it : it makes them feel uncomfortable. Take care, Kathleen C x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,157 Location: Huddersfield
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I'm not surprised you cried Jenni! The lack of care for you is just unacceptable, I'm so glad they finally got you an appointment for tomorrow. Here's hoping it brings some results for you.
Love and hugs, Doreen xx
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Rank: Advanced Member
Groups: Registered
Joined: 12/4/2009
Posts: 2,127
Location: Thornton Cleveleys
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Hi Jenni Will be thinking about you tomorrow; thank goodness you are getting to see the consultant! Start writing a list, you don't want to miss anything important after all this time! Get the red boots on and stomp away! Good luck Jenni, Lyn x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi Jenni,
All the best for tomorrow.
Isn't it awful that we have to cry before we are taken seriously.
Anne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 838 Location: Nottinghamshire
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How awful for you Jenni, but..............
At least you are being seen tomorrow and the best bit about it is it's a consulatant and not a registar, so thats good news.
Hope you manage a 8.30am appointment, I know I would struggle to be there that early.
Red Boots and plenty of tissues.
Be thinking of you.
Good Luck
Paula xx
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Rank: Advanced Member  Groups: Registered
Joined: 2/18/2010 Posts: 1,098 Location: farningham kent
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Hi Jenni
Hope tomorrow provides you with a positive outcome, none of this level of stress is doing the RA any good whatsoever ! I am a great believer in this stress thing with RA, I ve had a really stressful month, and I truly try not to let things get to me but my ESR and CRP have doubled and the RA has been really bad.
Like Lyn says write that list, will be thinking of you.
Julia x
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Rank: Advanced Member
Groups: Registered
Joined: 3/4/2010
Posts: 576
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Oh Jenni - how awful that you should have to cry before you get an appointment. I can understand your distress - why should we have to beg to be treated? It's not fair. Well at least you get to see the consultant now.
Hope it is a 'good' appointment Jenni, and you can make it clear where you are up to. Imagine us all behind you in the room, cheering you on! Thinking of you XX Ailsa
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Rank: Advanced Member
Groups: Registered
Joined: 3/24/2010
Posts: 102
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so sorry to hear your situation - but hope your appointment finds some successful course of action!
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Rank: Advanced Member  Groups: Registered
Joined: 4/20/2010 Posts: 1,749 Location: Somerset
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Oh Jenni
No wondered you cried. Poor thing you. How so very frustrating
However by now you would have seen the Specialist - fingers crossed to get sorted.
Look forward to update later today
Rose x
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Rank: Advanced Member  Groups: Registered
Joined: 8/25/2010 Posts: 1,289 Location: Buckinghamshire
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hi Jenni,
it's dreadful you've had to get is such a state to get seen,
hopefully by now you will have been seen and hopefully have some help.
do let us know,
Suzanne x
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Rank: Advanced Member  Groups: Registered
Joined: 12/3/2009 Posts: 3,006 Location: Timperley
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How did it go this morning? xxxxxxxxxxx
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Rank: Advanced Member  Groups: Registered
Joined: 12/6/2009 Posts: 177
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How awful for you Jenni. I would have cried too.
By now you must be back from the appointment so i hope all went well.
Love Shirley x
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Rank: Advanced Member
Groups: Registered
Joined: 5/19/2010
Posts: 384
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Hi Jenni,
Hope you are ok.
Anne
x
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Rank: Advanced Member  Groups: Registered
Joined: 3/8/2010 Posts: 914
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Hi Jenni, I do hope you got somewhere with your appointment, You really need a change for the better with the appointment system. I wish you every success in any new treatments you try and every help possible. You deserve it.  Take care Lorna xx
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